This page contains resources and reviews of books and products that I have implemented and found to have had a successful impact in the development of my sons. I am not an expert in anything other than my own children.

I hope you find these suggestions helpful and of benefit to your experience as  you journey through the world of Autism, Asperger's and more, oh  my!

Check back often for additions to my collection.

Please sign my Guestbook. 
Comment on these topics at BLOG.AUTISMASPERGERSANDMOREOHMY.COM

Sign Up Today to Receive our Newsletter!



Speech-to-Speech National Relay Service for people with speech disabilities

Most people are aware of the relay service available for individuals with hearing impairment. Many have even had experience using the service. Are you aware there is a similar service for individuals with a speech disability? This free telephone relay service is available 24 hours a day, 7 days a week.

This service is Speech-to-Speech or STS. It is available to all citizens of the USA, Virgin Islands, Puerto Rico, Australia, New Zealand and Sweden and does not require any typing in order to access the service.

Speech to Speech provides communication assistants for people with whose speech is difficult to understand on the telephone. You can use the service for any type of phone call you require. There is no registration process; all you need to do is pick up the phone and dial 711 and request a Speech-to-Speech operator. The service can be requested by friends, family and businesspersons to make a call to you as well.

For more information go to http://www.speechtospeech.org/about_us.html
 

Back to Top

The Child with Sensory Processing Disorder

As a parent, you know. You know your child is “different”. Maybe you can’t quite put your finger on it. But it is there. The “difference”. Maybe your child has a gait that is different from other kids when they run. Maybe they get frustrated or just don’t enjoy coloring or playing with play-doh, or the sand table or putting together puzzles. Maybe you have a “wall-bouncer”, you know the kind. Always jumping on furniture, tipping back in their chair, finding a reason to do anything besides sit and engage in a quiet activity.

My older son fit the latter category. His boundless energy and seemingly fearless feats of acrobatics were very obviously dangerous. Along with his diagnosis of Asperger's came an understanding of why he seemed to have a need to perform these outlandish feats and with that understanding came the desire for knowledge of how to help this child regulate his body using much safer activities.

One of the most valuable reads for me in the early days of diagnosis was Carol Stock Kranowitz book "The Out-Of-Sync Child". This easy to read book describes what Sensory Integration Disorder (also known as Sensory Processing Disorder) is and explains how problems with handling sensory input can manifest. The author discusses three categories of sensory function - tactile, vestibular, and proprioceptive - along with examples of the difficulties children with these sensory dysfunctions may experience in a preschool or home setting. Several checklists are provided to help you determine if your child has any of these sensory integration symptoms.

The most beneficial information that I got from this book is the description of exercises and activities that a parent or therapist can do with a child to assist them in becoming less bothered by sensory issues. The down to earth discussions of sensory integration issues are presented with layman terminology and is not confusing. The author uses checklists and charts in easy to use formats. I highly recommend this book for parents and teachers involved in the care of children who have sensory integration issues. Order your copy from Amazon.com today!

 
Back to Top 

 

 

Your IEP Action Plan
 
by Joan Celebi
 
Who doesn't get nervous before an IEP meeting?  Even under the best of circumstances, when the teachers are wonderful and things are going smoothly, IEP meetings can cause anxiety and worry.  And if there's disagreement between you and the school about what services your child should receive, the weeks, days, and minutes before the meeting can be a time of absolute dread.
 
As you prepare for an IEP meeting, your focus is on getting the right services for your son or daughter - so they can receive the best education possible.  But there's a crucial piece that's often overlooked: you!  Taking care of yourself and putting some smart strategies into place before, during, and after an IEP meeting is essential.  Here's my step-by-step IEP Action Plan for doing just that, so you'll be better able to focus on the meeting, and on the education you want for your child
.
 
Your IEP Action Plan
 
1. Long before your IEP meeting, take some time to step back and think: do you need help with this?  The IEP process can be complicated.  You don't have to do it all by yourself.  Consider hiring a special education advocate.  Advocates can take on many roles, from simply meeting with you and helping you organize your thoughts, to accompanying you to the IEP meeting. 
 
2. In the months and weeks before your meeting, make sure your records and documents are all in order.  Want to do this the easy way?  Buy the new "My IEP Toolkit" at organized4kids.com.  I just bought one and I can't wait until it arrives!  It's a large, high-quality 3-ring binder with sections for every type of document you need to keep - completely organized and all in one place.  It's got how-to's and tips galore, and it makes your IEP record-keeping effortless. 
 
3. Keep a running list of all your questions and anything you want to discuss at the meeting.  Put it in your binder.
 
4. About a month in advance, check in with all the teachers and professionals who work with your child.  Find out what concerns they may have.  You may be surprised to find out something you weren't aware of.  This serves two purposes:  first, you can address these concerns in your Parent Statement; and second, you don't want any surprises at the IEP meeting!
 
5. Three or four weeks before your meeting, start writing your Parent Statement.  You will want plenty of time to re-read it and revise it before the big day.  Make copies of your Parent Statement for everyone who will be attending -- and put the copies in your binder.
 
6. A few days in advance, figure out what you want to wear.  Make sure you've got groceries in the house, and enough laundry done.  Do anything ahead that will make the morning of your IEP meeting go smoothly. 
 
7. Decide in advance what you want waiting for you when you get home that day.  Have your favorite CD ready to play, a favorite food prepared, a set of comfy clothes to change into ... you get the idea!
 
8. Also in advance, block off a little bit of down time right after the meeting for you.  When you give yourself some time to recover, the rest of your day will go much more smoothly.
 
9. You may also want to plan ahead to do something fun, relaxing, or rejuvenating within a day or two of the meeting.  You'll have something to look forward to - and an antidote to that drained, overwhelmed feeling that sometimes comes along during IEP time. 
 
10.  And while you're looking at your calendar, set aside some time during the days following the meeting in case you need to follow up on ideas and suggestions from the IEP team.  The time it takes to make phone calls, send emails, and do research can really add up!
 
11. Eat a good dinner and go to bed early the night before, and eat a good breakfast the morning of the meeting.
 
12. In the hours before the meeting, take several "time outs" to close your eyes and breathe deeply.
 
13. Bring water to the meeting, and sip every few minutes.
 
14. During the meeting, ask all the questions you want, and don't be afraid to ask people to repeat or rephrase.  It can be hard to take it all in at once.  Be sure the meeting progresses at a pace you're comfortable with.  Jot down notes during the discussion for anything you want to clarify or follow up on. 
 
15. Immediately after the meeting, look over your notes, fill in any incomplete information, and add anything you know you're going to want to remember.  Put the notes in your binder, then put it away for at least a few hours.  Go for a walk, even if it's just for a few minutes.
 
16. Ideally, make dinner ahead, so you can give yourself a break that evening -- less kitchen work and more time to sit and eat with your children -- and enjoy them just the way they are.
                                                                         
Joan Celebi is a life coach and proud mother of two children, one of whom has special needs. Through teleseminars, individual coaching, and her free monthly newsletter, she brings the best strategies of life coaching to parents of children with special needs nationwide --helping them create lives of balance, harmony, and joy.  Learn more at www.SpecialNeedsParentCoach.com

Did you like this article?  Feel free to forward it around and/or print it out to share with friends, your parent group, etc.  You can even reprint it in your organization's newsletter, use it as a handout, put it in a resource notebook... use it however you like!  All I ask is that you keep the entire article intact, including my name and contact information.

Back to Top